Cut + Paste further reading and resources

• How CRISPR has shaped the way the Crick does science
  Francis Crick Institute, 2022
   
• Genome editing is changing the debate
  Francis Crick Institute, 2018

• Genetic technologies
  The Royal Society
   
• Human genome editing
  World Health Organisation

• Genome editing news
  Progress Educational Trust

World Health Organisation position paper and recommendations on genome editing

• Human genome editing: position paper (PDF download)
  World Health Organisation, 2021

• Human genome editing: recommendations (PDF download)
  World Health Organisation, 2021

• Human genome editing: a framework for governance (PDF download)
  World Health Organisation, 2021

Nuffield Council on Bioethics report on genome editing

• Genome editing and human reproduction (PDF)
  Nuffield Council on Bioethics, 2018

National Academies Press reports on human genome editing

• Heritable human genome editing (PDF download)
  National Academies Press, 2020
   
• Human genome editing: science, ethics and governance (PDF download)
  National Academies Press, 2017

Genetic Alliance report on patients' perspectives on genome editing

• Genome editing technologies: the patient perspective (PDF)
  Genetic Alliance, 2016

• Engineering for perfection: the false promises of gene editing in assisted reproduction (PDF download)
  Meghna Mukherjee and Nairi Shirinian, Othering & Belonging Institute, University of California, Berkeley, 2022
   
• Missing voices initiative
  Center for Genetics and Society
   
• Open letter to the planning committee of the Third International Summit on Human Genome Editing (PDF)
  Center for Genetics and Society, 2021
   
• Disability rights and heritable genome editing: resources for teaching and learning
  Center for Genetics and Society, 2019
   
• Russia's CRISPR "deaf babies": the next genome editing frontier?
  Center for Genetics and Society, 2019
   
• Illness or identity? A disability rights scholar comments on the plan to use CRISPR to prevent deafness
  Center for Genetics and Society, 2019
   
• 5 reasons why we need people with disabilities in the CRISPR debates
  Center for Genetics and Society, 2016
   
• Future past: disability, eugenics, & brave new worlds
  Center for Genetics and Society, 2013
   
• The ‘perfect’ baby?: the dangers of gene editing in assisted reproduction
  Center for Genetics and Society, 2022
   
• Equity, sovereignty, and racial justice: beyond access in debates on human genome editing
  Center for Genetics and Society, 2022
   
• Alice Wong - "Resisting ableism: disabled people and human gene editing" (video, 13m30s)
  Stanford Medicine X, 2017
   
• Disability justice and gene editing: exploring multiple perspectives (video, 1h15m25s)
  Center for Genetics and Society, 2017
   
• Assembly for the Future: the last disabled oracle (video, 49m00s, requires Vimeo login)
  The Things We Did Next, 2020
   
• The 'perfect' baby? The dangers of gene editing in assisted reproduction (video with transcript, 56m21s)
  Othering & Belonging Institute, University of California, Berkeley, 2022

Comment pieces by writers with lived experience of genetic conditions

• The patients who don't want to be cured
  Sarah Zhang, The Atlantic, 2018 
   
• Please don't edit me out
  Rebecca Cokley, The Washington Post, 2017
   
• Why I'm speaking about human genetic engineering as a Black woman with disabilities
  Anita Cameron, Center for Genetics and Society, 2017

• Real-life X-Men: how CRISPR could give you superpowers in the future
  Synthego
   
• Should we create superhumans?
  Doha Debates, 2020
   
• Designer babies? Hi-tech preimplantation genetic testing may soon come to Israel
  Times of Israel, 2022
   
• Hipster eugenics: better babies for billionaires
  Center for Genetics and Society, 2022

• Genetic Alliance UK
   
• Sickle Cell Society
   
• Cystic Fibrosis Trust
   
• Spinal Muscular Atrophy UK
   
• Don't Screen Us Out